Back from Chemoville

I'm back from my trip to Chemoville. I've decided that getting chemo is like taking a trip. I don't know how many days I'll be "gone". In my last post, I mentioned how I don't take calls on chemo day. That's b/c there's no cell phone signal to my tower (aka my brain). If you do manage to talk to me while I'm tripping, I may sound fuzzy b/c the "signal" is weak. Dr. Lilly's nurse practitioner did confirm for me that "chemo brain" is legitimate. I will say Round 4 has been the easiest so far. Dr. Lilly cut the Decadron to less than half and gave me a shot of something else. It must have worked b/c Monday was the only day I felt psychotic.
I ended up staying home last night. I was so tired, I knew I didn't have the energy to trick-or-treat with the girls. So Scott and his mom took them and they had a good time. I laid on the couch and watched a documentary about Amityville Horror; I decided I could write my own documentary called Cancerville Horror. Think of the similiarities- I've been slashed open twice, body parts removed, foreign objects put in, drugs and more drugs, hallucinations, screaming fits, hey this really has the makings for a movie...
One last thing, my platelets were down to 78. 50 is the cutoff but Dr. Lilly doesn't think they will drop lower than that. In other words, he doesn't foresee chemo being delayed. But then again, he is an eternal optimist. He always sees the bright side of everything. I am so grateful for him. No matter what my side effects are, he is ready to try something new to help alleviate them.
Ok, gotta go get a Neulasta shot to help build those platelets. Thanks for all the prayers. I know I am only surviving by the Grace of God and all of you!!!
Oh, just a couple more things. If you could just stop what you are doing right now and say a prayer for a little boy named Matthew, that would be much appreciated. He is a little guy who just turned 1 and he is very very sick. He is undiagnosed at this point, but we know he desperately needs prayers. He has a website on www.caringbridge.org/visit/mattheweakins
Also, I wanted to tell you that Shawndra Turner is going to be in the audience at the Oprah show on November 8th. We are all hoping she will get a chance to talk to Oprah while she's there. Numerous people are emailing the Oprah show asking them to talk to her. This is Shawndra's dream- to be a guest on Oprah. Good luck Shawndra!
Love,
Michele;